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A diagnosis of Krabbe; and the medical team getting to meet him before his condition progressed.
Two Sisters Journey with Krabbe disease: The Moore Family Story
Krabbe disease: One Parent's Journey
Nikola's Krabbe Disease Story: Extended Interview
Advocating for Newborn Screening for Krabbe Disease
Once Upon A Gene - Krabbe Disease with Kasey Feldt
Krabbe Disease Transplant Protocols and Outcomes by Dr. Joanne Kurtzberg
IKD and LIKD Study
Palliative Care: First I thought they were the Grim Reaper; I learned they'd always be there for us.
Breathing and Congestion | Krabbe Leukodystrophy
Webinar: Rationale for Reduced-Intensity Conditioning (RIC) Transplantation in Krabbe Disease
Diagnosis and Clinical Management of Alexander Disease (AXD)